Searching for autism information on the web can be overwhelming. So, where do you turn to for the most relevant information and resources when there are so many different options? We created this list based on recommendations from leading ASD organizations.
Is your child suffering from autism? Do you want to help your child surpass this disorder so that he can live like other kids? Nowadays, there are a lot of ways to help children reverse their autism symptoms. This is due to extensive autism research and studies. Different kinds of treatments, both natural and conventional, have been discovered.
Most researches have also been very useful in identifying the varying degrees of the disorder. Autism research was mostly conducted by experts, such as doctors and social workers. Medical students and highly-concerned citizens have also contributed to autism research.
Benefits of Autism Research
With the diversity of autism research that has been conducted for the past few years, it is safe to assume that the knowledge gleaned is applicable to a lot more people. Now, if you have an autistic child, you will greatly benefit from the findings available.
Through these findings, there are now many ways to help sufferers live normally. Education and teaching materials have become more comprehensive. Through autism research, breakthroughs have also been made in terms of nutrition. It was found out that chemicals, such as foods toxins, can induce autism symptoms.
With such studies, you can also better understand the nature of your child’s disorder. Therefore, you will know what to do in any situations you are in.
Where to Find Autism Research
If you’re looking for materials on autism research to assist you in helping your child, there are a lot of centers that can lend you some printed or multimedia materials. There are also several organizations, like the Autism Research Institute, that conduct regular research aimed at improving the lives of autism sufferers all over.
Aside from these, there are also lots of online autism research sites on the Internet that offer similar information.
Private and Non-Profit Organizations
- American Academy of Pediatrics (AAP): Autism
- Asperger/Autism Network (AANE)
- Association of University Centers on Disabilities (AUCD)
- Autism NOW
- Autism Science Foundation (ASF)
- Autism Society
- Autism Speaks
- Autistic Self Advocacy Network (ASAN)
- Brain & Behavior Research Foundation (BBRF): Autism
- Center for Autism and Related Disorders (CARD)
- International Society for Autism Research (INSAR)
- Madison House Autism Foundation
- Nancy Lurie Marks Family Foundation
- National Autism Association
- Organization for Autism Research (OAR)
- Simons Foundation Autism Research Initiative (SFARI)
- Southwest Autism Research & Resource Center (SARRC)
- US Autism and Asperger Association
Advocacy, information, and support
The Asperger Syndrome and High Functioning Autism Association website offers some great resources for those with higher functioning autism. AHANY also provides a set of useful questions to ask when choosing a camp or summer program for your special needs child.
Started by a woman whose son was diagnosed with autism, Autism Highway is both informative and fun. The website is easy to navigate and it provides an extensive list of autism-related events and specialists. In addition, Autism Highway includes interactive games for kids.
Autism Navigator is a collection of web-based tools and courses developed to bridge the gap between science and community practice. They have integrated the most current research into an interactive web platform with video to illustrate effective evidence-based practice. The video clips come from the rich library of video from federally funded research projects at the Autism Institute at Florida State University.
The Autism Research Institute focuses on researching the causes of autism, as well as developing safe and effective treatments for those currently affected by the disorder.
The Autism Society is a grassroots autism organization working to increase public awareness about the day-to-day issues about people across the spectrum, advocate for appropriate services for individuals of every age, and provide the latest information regarding treatment, education, research, and advocacy. Find your local chapter here. The society has also partnered with AMC Entertainment to provide children affected by autism the opportunity to watch hit movies in a sensory-friendly environment, with the lights turned up and the sound turned down. Find a list of upcoming films in your city here.
Autism Speaks is a leading autism awareness, science, and advocacy organizations. The website provides a comprehensive resource guide for all states. The site also offers a robust list of apps that parents may find useful, including games that focus on communication and social skills. The 100 Day Kit for Newly Diagnosed Families of Young Children was created specifically for families of children ages 4 and under to make the best possible use of the 100 days following their child’s diagnosis of autism.
Sign up for Disability Scoop’s e-mail news to receive the most current updates on developmental disabilities. Disability Scoop’s experts have been cited by multiple online news sites.
A free social network for parents of kids with autism. With over 30,000 parents registered on the site, you can find parents just like you based on where you live, the age of your child, your child’s sub-diagnosis and developmental needs, and gender. Parents share tips, support, and photos, as well as ask and answer each others’ questions. In addition, there is a searchable provider directory of over 35,000 autism specialists and autism-friendly providers constantly updated by parents on the site. MyAutismTeam is the official social network and resource guide for Autism Speaks.
OAR’s mission is to apply research to the challenges of autism. The organization uses science to address the social, educational, and treatment concerns of self-advocates, parents, autism professionals, and caregivers. In addition to funding research, OAR disseminates new and useful information to as many members of the autism community as possible, and directs all research and programs initiatives toward enhancing the quality of life for individuals with autism.
Sesame Workshop created Sesame Street and Autism: See Amazing in All Children, a nationwide initiative aimed at communities with children ages 2 to 5. Developed with input from parents, people who serve the autism community, and people with autism, See Amazing in All Children offers families ways to overcome common challenges and simplify everyday activities. The project also fosters an affirming narrative around autism for all families and kids.
A great site for accurate, reliable information about special education law, education law, and advocacy for children with disabilities. Early intervention is invaluable because it links parents to services in the community, but it can be hard to find services without a long waiting list. Families can search on their own for providers using the Wrightslaw Yellow Pages for Kids With Disabilities.
Federal agencies and federally-funded organizations
The Center for Parent Information and Resources (CPIR) serves as a central resource of information and products to the community of Parent Training Information (PTI) Centers and the Community Parent Resource Centers (CPRCs). The Parent Training and Information Centers (PTI) found in every state are a rich source of information and training tailored for parents, including parents whose primary language is not English or themselves have special training needs. In addition, Community Parent Resource Centers (CPRC) throughout the country serve targeted, underserved communities. To find the PTI or CPRC that serves your community, go to the Center on Parent Information and Resources.
The Center is designed to increase the capacity of families and providers to advocate for, acquire, and implement effective assistive and instructional technology (AT/IT) practices, devices, and services. Research-based technologies have great potential to help infants, toddlers, children, and youth with disabilities participate fully in daily routines; have increased access to the general educational curriculum; improve their functional outcomes and educational results; and meet college- and career-ready standards.
The Early Childhood Technical Assistance Center (ECTA), located at the University of North Carolina at Chapel Hill, supports the strengthening of state and local service systems to ensure that children with disabilities and their families receive high-quality, evidence-based, culturally appropriate, and family-centered support and services.
The IRIS Center, funded by the Office of Special Education Programs and based at Vanderbilt University and Claremont Graduate University, creates and disseminates resources about evidence-based instructional and intervention practices for preservice preparation and professional development programs. See the Autism Spectrum Disorder self-guided training modules for teachers.
The National Professional Development Center on Autism Spectrum Disorder (NPDC) has worked to develop free professional resources for teachers, therapists, and technical assistance providers who work with individuals with ASD. Resources include detailed information on how to plan, implement, and monitor specific evidence-based practices.
When your child enters public school, he or she has rights under federal and state laws. The U.S. Department of Education has information about federal laws and state laws. The Department’s Office of Special Education Programs (OSEP) supports projects that provide information and technical assistance to families of infants, toddlers, children and youth with disabilities. Families can also find a wealth of information about the Individuals with Disabilities Education Act (IDEA) at OSEP’s IDEA website. The website contains the full text of IDEA and the regulations, as well as guidance documents and a wide range of other resources.